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Qualifications

PhD, MSc(Econ), RNLD, ENB 805, Cert Ed(FE), FRCN, PFHEA, OBE


About

Main Teaching Areas

Learning disability nursing, participatory research, legal and ethical issues relating to vulnerable persons


Experience

I worked in a range of residential and community settings supporting people with learning disabilities before moving to work in nurse education in 1989. I previously worked in the School of Nursing in UWCM and took up post at the then University of Glamorgan in 1999.

Since 2002 I have headed the Unit for Development in Intellectual Disabilities (UDID) which is based within the Faculty of Life Sciences and Education.

Responsibilities

Head of the Unit for Development in Intellectual Disabilities
Lead for the Developments Across the Lifespan Research Cognate Group
Member of the Faculty Research Programmes Committee

Publications

Davies R, Mansell I, Northway R, Jenkins R (2006) Responding to the abuse of people with learning disabilities: the role of the Police: Journal of Adult Protection: Volume 8: Part 1: 11 – 19

Delves-Yates, C., Elcock, K., Hall, C., Northway, R., Trenowith, S. (2015) What is nursing? What is a nurse? In Delves-Yates, C., Elcock K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2015) Essentials of Nursing Practice, London: SAGE. 3 – 14

Emerson, K., Northway, R. (2015) Patient, service user, family and carer perspectives. Delves-Yates, C., Elcock, K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2015) Essentials of Nursing Practice, London: SAGE . 185 – 196

Flood, S. Bennett, D., Melsome, M. Northway, R. (2013) Becoming a researcher, British Journal of Learning Disabilities, 41 (4) 288 – 295

Fothergill, A. Miitchell, B., Lipp, A., Northway, R. (2013) Setting up a mental health service user research group: a process paper, Journal of Research in Nursing, 18 (8) 746 – 759

Feet, I. & Northway, R. (2003) Supporting People with Chronic Disease in Europe The Role and Contribution of Nurses, Copenhagen: WHO

Ham M, Jones N, Mansell I, Northway R, Price L, Walker G: (2004) �I�m a researcher!’ Working together to gain ethical approval for a participatory research study: Journal of Learning Disabilities: Vol: 8: Issue: 4: 397-407

Jenkins R, Davies R, Northway R (2007) Zero tolerance of abuse of people with intellectual disabilities: implications for nursing; Journal of Clinical Nursing: Vol 17: 3041 – 3049

Jenkins, R. & Northway, R. (2002) Advocacy and the learning disability nurse, British Journal of Learning Disabilities, 30 (1) 8 � 12

Jenkins R., & Northway, R. (2003) Health, quality of life and people with intellectual disability. In Francuz, P. et al (eds) Studia z Psychologii (11) W Katolickim Uniwersytecie Lubelskim, Lublin: Redakcja Wydawnictw KUL 173�188.

Jones v, Northway R (2010) Children with learning disabiities: In Glasper A, Richardson J (eds) A Textbook of Children’s and Young People’s Nursing, Edinburgh: Churchill Livingstone: 735 – 744

Llewellyn P, Northway R (2007) An investigation into the advocacy role of the learning disability nurse: Journal of Research in Nursing: Vol 12; Part 2: 147 – 161

Llewellyn P, Northway R (2007) The views and experiences of learning disability nurses concerning their advocacy education. Nurse Educ. Today (2007), doi:10.1016/j.nedt.2007.02.015

Llewellyn P, Northway R (2008) The views and experiences of people with intellectual disabilities concerning advocacy: Journal of Intellectual Disabilities: Volume 12: Part 3: 213 – 228

Mansell I., & Northway, R. (2003) Meeting the health needs of people with intellectual disabilities: overcoming the barriers. In Francuz, P. et al (eds) Studia z Psychologii (11) W Katolickim Uniwersytecie Lubelskim, Lublin: Redakcja Wydawnict KUL 189�206.

MacRae, S., Brown, M., Karatzias, T., Taggart, L., Truesdale-Kennedy, M., Walley, R., Sierka, A., Northway, R., Carey, M., Davies, M. (2015) Diabetes in people with intellectual disabilities: a systematic review of the literature, Research in Developmental Disabilities, 47, 352 – 374

Northway, R. (2001) Changing the balance of power? People with intellectual disabilities and participatory research. In Francuz,P. Oles,P. Otrebski,W. (eds) Studia z Psychologii W Katolickim Uniwersytecie Lubelskim, Lublin: Redakcja Wydawnictw KUL. 13 � 30

Northway, R. (2001) Poverty as a practice issue for learning disability nurses, British Journal of Nursing, 10 (18) 1186 � 1192

Northway, R. (2003) Participatory Research. In Jukes, M. Bollard, M. (eds) Contemporary Learning Disability Practice, Salisbury: Quay Books. 165 � 174

Northway R (2005) Case Management, Care Coordination and Managed Care. In Health Promotion for Persons with Intellectual & Developmental Disabilities. Ch 10 pp. 235 � 263. Nehring W (Editor), American Association on Mental Retardation

Northway, R. (2005) Disabled Children. In Preston, G. (ed) At Greatest Risk. The Children Most Likely to be Poor, London: Child Poverty Action Group. 79 � 91

Northway R (2008) Participative approaches to research. In Watson R et al (eds) Nursing Research, Designs and Methods: Edinburgh: Churchill Livingstone: 23 – 33

Northway R (2009) Researching Learning Disability Nursing. In Jukes M (ed) Learning Disability Nursing Practice. London: Quay Books: 155 – 183

Northway R (2010) Participatory research Part 1: Key features and underlying philosophy: International Journal of Therapy and Rehabilitation: Vol 17: Part 4: 174 – 179

Northway R (2010) Participatory research Part 2: Practical considerations: International Journal of Therapy and Rehabilitation: Vol 17: Part 5: 226 – 231

Northway, R. (2015) Introduction to the sociological context of nursing. Delves-Yates, C., Elcock, K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2015) Essentials of Nursing Practice, London: SAGE . 651 – 662

Northway, R., Ameen, J., Coll, A., Jenkins, R., Cornthwaite, F. & Evans, S. (2004) Information, Advice and Support for Older People Living in Residential Care: An Exploratory Survey of Advocacy, Pontypridd: School of Care Sciences, University of Glamorgan

Northway, R., Beech, I. (2015) Ethics. In Delves-Yates, C., Elcock, K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2015) Essentials of Nursing Practice, London: SAGE . 65 – 76

Northway, R., Bennett, D., Melsome, M., Flood, S., Howarth, J., Jones, R. (2013) Keeping safe and providing support: a participatory survey about abuse and people with intellectual disabilities, Journal of Policy and Practice in Intellectual Disabilities, 10 (3) 236 – 244

Northway, R., Davies, R. , Jenkins, R. Mansell, I. & Fairbairn, G. (2004) Abuse of People with Learning Disabilities: An Examination of Policy, Practice and Educational Implications in Wales, Pontypridd: School of Care Sciences, University of Glamorgan

Northway R, Davies R, Jenkins R, Mansell I (2005) evidencing good practice in adult protection: informing the protection of people with learning disabilities from abuse: Journal of Adult Protection: Vol 7: Part 2: 28 – 36

Northway R, Davies R, Mansell I, Jenkins R (2007) ‘Policies don’t protection people, it’s how they’re implemented’: policy and practice in protecting people with learning disabilities from abuse: Social Policy and Adminstration: Vol 41: Part 1: 86 – 104

Northway, R. Holland-Hart, D., Jenkins, R. (2016) Meeting the health needs of older people with intellectual disabilities: exploring the experiences of residential social care staff, Health and Social Care in the Community, DOI: 10.1111/hsc.12380

Northway, R., Howarth, J., Evans, L. (2014) Participatory research, people with intellectual disabilities and ethical approval: making reasonable adjustments to enable participation, Journal of Clinical Nursing, 24, 573 – 581

Northway, R. & Jenkins, R. (2003) Quality of Life as a concept for developing learning disability nursing practice? Journal of Clinical Nursing, 12, 57 � 66

Northway, R. Jenkins, R. (2013) Safeguarding Adults in Nursing Practice, London: SAGE

Northway, R. Jenkins, R., Holland-Hart, D. (2016) Training of residential social care staff to meet the needs of older people with intellectual disabilities who develop age-related health problems: an exploratory study, Journal of Applied Research in Intellectual Disabilities, DOI 10.111/jar.12283

Northway, R., Jenkins, R., Jones, V., Howarth, J., Hodges, Z. (2013) Researching policy and practice to safeguard people with intellectual disabilities from abuse: some methodological challenges, Journal of Policy and Practice in Intellectual Disabilities, 10 (3) 188 – 195

Northway, R., Melsome, M., Flood, S., Bennett, D., Howarth, J., Thomas, B. (2013) How do people with intellectual disabilities view abuse and abusers? Journal of Intellectual Disabilities, 17 (4) 361 – 375

Northway R, Mitchell D, Kaur-Mann K (2006) Review of Learning Disability Nursing Research 1995 – 2003, Pontypridd: University of Glamorgan.

Northway, R., Parker, M., James, N., Davies, L., Johnson, K., Wilson, S. (2015) Research teaching in learning disability nursing: exploring the vies of student and registered learning disability nurses, Nurse Education Today, 35 (12) 1155 – 1160

Northway R, Wheeler P (2005) Working together to undertake research. In Lowes L, Hullatt I (eds) Involving service users in health and social care research. London: Routledge: 199 – 208

Otrebski, W. Mansell, I. & Northway, R. (2003) Social policy and people with intellectual disabilities in Poland: enhancing quality of life? Journal of Learning Disabilities, 7 (4) 363 � 374

Spargo, D. Northway, R. (2011) Meeting the health needs of children and young people with severe and profound learning disabilities: the contribution of the school nurse and community learning disability nurse, SLD Experience, 61 (Autumn) 19 – 24

Taggart, L., Coates, V., Clarke, M., Bunting, B., Davies, M., Carey, M., Northway, R., Brown, M., Truesdale-Kennedy, M., Martin-Stacey, L., Scott, G., Karatzias, T. (2015) A study protocol for a pilot randomised trial of a structured education programme for the self-management of Type 2 diabetes for adults with intellectual disabilities, Trials, 16: 148 DOI 10.1186/s13063-015-0644-y


Memberships

I am a member and Fellow of the Royal College of Nursing (RCN). I am also a member of the International Association for the Scientific Study of Intellectual Disabilities.

External

Appointed as Visiting Professor of Nursing in the School of Nursing and Midwifery, University of Ulster 2011 (continuing)

Editor of the Journal of Intellectual Disabilities (since January 2013)

Chair of the Royal College of Nursing Research Society Steering Committee (since 2011).

Member of the UK Steering Group for Strengthening the Commitment

Member of the Steering Group of the UK Learning Disability Nursing Advisory Network.

I am a member of the Health Research Grants Committees for the National Institute of Health and Social Care Research (NIHSCR).

I am a member of the RCN Fellows Group

Member of the Welsh Government Learning Disability Advisory Group (2012 – )

Co-Chair of the Welsh Government Learning Disability Advisory Group (2014 -)

Chair of the Wales Ministerial Advisory Group for implementation of the ‘Strengthening the Commitment’ Report (UK learning disability nursing strategy)

Member of the Editorial Board of Journal of Clinical Nursing

Member of the Editorial Board for Nurse Researcher

Member of the Scientific Committee for the RCN International Research Conference (since 2013)

Member of Mencap Cymru External Advisory Panel (since 2015)

Member of Mencap Advisory Panel (since 2016)

Member of the NMC Thought Leadership Group developing new Standards for Pre-registration Education (since 2016)

I was a member of the Akinsanya Doctoral Prize Judging Panel (2010 -13 )

Trustee of Tenovus (Cancer charity) (2010 – )

I was a member of the Nursing and Midwifery Council Learning Disability Field Specific Competencies Working Group (2009)

I was a member of the Research Assessment (RAE) 2008 Sub Panel 11 (Nursing and Midwifery).

I edited the journal Learning Disability Practice 2003 – 2007.


Consultancy

I facilitated the development by the UK Learning Disability Consultant Nurse Network of a document setting out a vision for the future of learning disability nursing.

With colleagues from the Welsh Institute of Health and Social Care undertook a stakeholder consultation exercise concerning changes to supported living arrangements in one local authority.


Research

Research Interests

Participatory research, learning disability nursing, promotion of health and well being, advocacy, abuse, research ethics.

Current Research Activity

Previous research has focused on the views of mental health service users concerning their medication and other therapies, advocacy for older people living in residential care, the implementation of the vulnerable adults policy framework in services for people with learning disabilities in Wales, dementia and people with learning disabilities and palliative care for people with learning disabilities in Wales.

I have recently completed a participatory research project which is looked at what people with learning disabilities understand by abuse and what support they require if they are abused. I am also involved in a three centre study (with University of Ulster and Edinburgh Napier) exploring the feasibility of adapting a diabetes self management programme for use with people with learning disabilities and their families and carers.

I am currently supervising PhD students who are examining the quality of dementia care, the role of the learning disabilities nurse in Wales and in Toronto in supporting people with challenging behaviour, residential social care staff supporting people with learning disabilities living with cancer, the experience of social workers in relation to the abuse of disabled children and interprofessional working in an innovative project.

I am currently supervising a KESS MRes studentship which is focusing on the support people with learning disabilities feel they need post abuse.

Areas of Expertise

Learning (intellectual disabilities), health needs, nursing, participatory research

Twitter

@northwayruth

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