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Qualifications

BSocSc, MA, PhD


About

Rachel has worked in HESAS on a part-time basis since October 1999.

She previously worked in the Welsh Institute for Health and Social Care as a Senior Fellow. Rachel took a first degree in sociology and social policy at University College Dublin and completed her Master�s degree at St. Patrick�s College Maynooth, having spent time studying at the University of Bath and the University of Tilburg in the Netherlands.

Her PhD focused on the social policy implications of the new genetics in Ireland. Rachel�s research interests in Wales are mainly qualitative and centre on improving public participation in health policy making and the future impact of genetics on health care.

Rachel also works part-time in Cardiff University as a Senior Research Fellow in the Cancer Genetics Service for Wales.


Responsibilities

  • PhD supervisor
  • Member of the Faculty Ethics Committee
  • Board member of the European Institute for Women�s Health
  • Member of the Editorial Board of the International Journal of Consumer Studies
  • I am a regular reviewer of articles and have reviewed for a range of journals including the British Medical Journal, Journal of Nursing Ethics, New Genetics and Society, Family Practice, New Genetics and Society, Archives of Disease in Childhood, Patient Education and Counselling and Technology Analysis and Strategic Management.
  • Reviewer of research applications for the Wellcome Trust, the ESRC, CRUK and Breast Cancer Campaign
  • Academic Facilitator for the rcbcwales Community of Scholars
  • Member of the Management Board of the Beacon for Wales


Publications

Iredale R, Longley M. (1999) Public involvement in policy making: the case of a Citizens� Jury on genetic testing for common disorders. Journal of Consumer Studies and Home Economics, Vol.23, No.1, pp 3-10.

Gray J, Brain K, Iredale R, Alderman J, France E, Hughes H. (2000) A pilot study of telegenetics. Journal of Telemedicine and Telecare, Vol.6, No.4, pp 245-247.

Iredale R. (2000) Eugenics and its relevance to contemporary health care. Journal of Nursing Ethics, Vol.7, No.3, pp 205-214.

Iredale R, Longley M. (2000) Reflections on Citizens� Juries: the case of the Citizens� Jury on Genetic Testing for Common Disorders. Journal of Consumer Studies and Home Economics. Vol.24, No.1, pp 41-47.

Iredale R, France E. (2001) Cancer genetics: attitudes of community practitioners in Wales. Community Practitioner, Vol.74, pp 2-4.

Leeson S, Iredale R, Stansfield K, Evans A, Gray J. (2001) Cancer genetics in Wales: opinions of gynaecologists on the management of individuals at risk of familial ovarian cancer. European Journal of Cancer Care, Vol.10, No.3, pp 172-179.

Elwyn G, Iredale R, Gray J. (2002) Reactions of GPs to a triage-controlled referral system for cancer genetics. Family Practice, Vol.19, pp 65-71.

Iredale R, Gray J, Murtagh G. (2002) Telegenetics: a pilot study of video-mediated genetic consultations in Wales. International Journal of Medical Marketing, Vol.2, No.2, pp 130-136.

Stansfield K, Iredale R, Leeson S, Evans A, Gray J. (2002) �In the Family�: experiences of general practitioners in Wales on the management of individuals at risk of familial cancer. Journal of Risk Management, Vol.4, No.1, pp 61-69.

Iredale R, Brain K, Edwards L, Gray J, France E. (2003) The information and support needs of women at high risk of familial breast and ovarian cancer: how can cancer genetic services give patients what they want? Familial Cancer, Vol. 2, pp 119-121.

Iredale R, Dolan G, McDonald K, Kirk M. (2003) Public attitudes to human gene therapy: a pilot study in Wales, Community Genetics, Vol. 6, No.3, pp 139-146.

Williams BG, Iredale R, Brain K, France E, Barrett-Lee P, Gray JR. (2003) The experiences of men with breast cancer: an exploratory focus group study. British Journal of Cancer, Vol.89, pp 1834-1836.

Dolan G, Iredale R, Ameen J (2004) Consumer use of the internet for health information: a survey of primary care patients. International Journal of Consumer Studies, Vol. 28, No.2, pp 147-153.

McDonald K, Higgs G, Iredale R, Tempest V, Gray J. (2004) Analysing spatial trends in referral patterns to cancer genetics services: a preliminary investigation of regional variations in Wales, Health Services Management Research, Vol.17, pp 1-11.

Phelps C, Platt K, France L, Gray J, Iredale R. (2004) Delivering information about cancer genetics via letter to patients at low and moderate risk of familial cancer: a pilot study in Wales. Familial Cancer, Vol. 3, pp 55-59.

Elwyn G, Edwards A, Iredale R, Davies P, Gray J. (2005) Identifying future models for delivering genetic services: a nominal group study in primary care. BMC Family Practice, Vol.6, pp 14.

Iredale R, Jones L, Gray J, Deaville J. (2005) �The Edge Effect�: A pilot study exploring some factors affecting referrals to cancer genetics services in rural Wales. Health & Place, Vol. 11, pp 197-204.

Phelps C, Bennett P, Iredale R, Anstey S, Gray J. (2005) The development of a distraction-based coping intervention for women waiting for genetic risk information: a phase 1 qualitative study. Psycho-Oncology, Vol. 15, No. 2, pp 169-173.

Sivell S, Iredale R, Rapport F, Jones W, Edwards A, Elwyn G, Gray, J. (2005) A focus group study exploring patient views on decision aids for breast cancer. Journal of Medical Genetics Vol. 42 (supp1), pp125.

Tempest V, Higgs G, McDonald K, Iredale R, Bater T, Gray J. (2005) A Pilot Study of Spatial Patterns in Referrals to a Multicentre Cancer Genetics Service, Community Genetics, Vol.8, No.2, pp 73-79.

Tempest V, Iredale R, Gray J, France L, Anstey S, Steward J. (2005). Pedigree construction and disease confirmation: a pilot study exploring the role of non-clinical personnel. European Journal of Human Genetics, Vol.13, No.9, pp 1063-1070.

Brain K, Williams B, Iredale R, France E, Gray J. (2006) Psychological Distress in Men with Breast Cancer. Journal of Clinical Oncology, Vol.24, No.1, pp 95-101.

Davies J, Iredale R. (2006) An exploration of midwives� perceptions about their role. MIDIRS Midwifery Digest, Vol.16, No. 4, pp 455-460.

Iredale R, Brain K, Williams B, France E, Gray J. (2006) The experiences of men with breast cancer in the United Kingdom. European Journal of Cancer, Vol.42, No.3, pp 334-341.

Iredale R, Longley M, Thomas C, Shaw A. (2006) What choices should we be able to make about designer babies? A Citizens� Jury of Young People in South Wales. Health Expectations, Vol.9, pp 207-217.

Rapport F, Iredale R, Jones W, Sivell S, Edwards A, Gray J, Elwyn G. (2006) Decision aids for familial breast cancer: exploring women�s views using focus groups. Health Expectations, Vol.9, pp 232-244.

Iredale R, Elwyn G, Edwards A, Gray J. (2007) Attitudes of genetic clinicians in Wales to the future of cancer genetic services. Journal of Evaluation in Clinical Practice, Vol.13, pp 86-89.

Iredale R, Longley M. (2007) From Passive Subject to Active Agent: The Potential of Citizens� Juries in Nursing Research. Nurse Education Today, Vol. 27, Issue 7, pp 788-795.

Iredale R, Williams B, Brain K, France E, Gray J. (2007) The information needs of men with breast cancer. British Journal of Nursing, Vol.16, Issue 9, pp 540-544.

Iredale R, Rapport F, Sivell S, Jones W, Edwards A, Gray J, Elwyn G. (2008) Exploring the requirements for a decision aid on familial breast cancer: a qualitative study with patients referred to a cancer genetics service in the UK. Journal of Evaluation in Clinical Practice, Vol.14, pp 110-115.

McDonald K, Iredale R, Higgs G. (2008) Primary care referrals to a British regional cancer genetics service. Journal of Clinical Nursing, Vol.17, pp 3074-3076.

McDonald K, Iredale R, Higgs G. (2008) The geography of genetics: an analysis of referral patterns to a cancer genetics service. Genomic Medicine, Vol.1, Nos3-4, pp 129-138.

McDonald K, Iredale R, Higgs G. (2009) An exploratory analysis of the effects of deprivation on referrals to a cancer genetics service. Health&Place. In preparation.

Madden K, Taverner N, Iredale R. (2009) Recruiting and retaining young people as participants to a long term qualitative research project. Youth and Society. In preparation.

Taverner N, Madden K, Iredale R. (2010) Young people�s attitudes to family history. Health Expectations. In preparation.

Stackhouse R, Anderson C, Shaw A, Iredale R. (2010) The National DNA Database on Trial. New Genetics and Society. In press.


Memberships

  • Board member of the European Institute for Women�s Health
  • Editorial Board of the International Journal of Consumer Studies
  • Member of the British Society for Human Genetics
  • Member of the Magistrates� Association


Consultancy

2006. The attitudes of women with early breast cancer to adjuvant endocrine therapy. (Novartis)
2007. Feasibility study for a science centre in East Cardiff (Techniquest)


Research

  • Citizens� Jury on Designer Babies
  • European patient survey on adjuvant endocrine therapy in breast cancer
  • Discrimination against women and young girls in the health sector across the EU
  • Genetic Literacy and Family History: A study of young people in South Wales
  • The National DNA Database on Trial
  • The role of speech and language therapy in criminal justice


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